So we went for a follow up check up at our doctor today and I am more concerned about Addi than ever.
He told us that HSP or Henoch-Schonlein purpura the condition that Addi has, is an auto immune disease that affects blood vessels. It causes vasculitis, which causes swelling, bruising, and red rash-like bumps on the lower extremities. It can cause some serious problems, so it's suggested that the patient have follow up labs once a week for 6 months, then once a month for 3 years. Holy moly! Our doc did lab work and everything was normal so we have to go back next week, then probably once a month or so. Wow! It's so scary. Our poor girl. She has been so irritable. She has complained of aching legs, a headache, a backache and a stomach ache. I guess it's no wonder she is so grouchy.
3 comments:
I'm sorry. We had no idea. We are all so thankful she is doing better!! Love you Addi
Please try the jar we talked about to help her deal with the pain. Let me know how it works, or not. Tell Addi Grammy loves her and wants her to get better. Take care of you too, Candice. Love as always, Your Mommy
Hi,
My apologies for 'dropping' in, I have a google search set up for HSP.
My daughter was diagnosed with it a couple of years ago.
Just FYI, the purpura, although typically found on the lower extremities can occur anywhere on the body.
If you haven't done so already I would recommend taking a look at http://health.groups.yahoo.com/group/Henoch-Schonlein/
it's a support group for parents with children who have HSP.
I also started a google group http://groups.google.com/group/henoch-schonlein-purpura
There is also a Delphi support group:
http://forums.delphiforums.com/n/main.asp?webtag=hspsupport&nav=messages&prettyurl=%2Fhspsupport%2Fmessages
Hope your daughter gets better soon.
Post a Comment